I said I would let you know my new plan for Eli--& I would do it pretty soon. First off, I shouldn't tell people what I am going to do, because usually the opposite happens unfortunately. I was hoping to post before our vacation--but it never happened & I am gonna quickly let you know what we decided for Eli next year, right now. :)
First we were going to meet the teacher at Freedom Elementary for his life skills class, if we felt like it was a good fit--we would then sign the papers & that is where Eli would be going to school. So we met the teacher--seemed like an awesome lady & I was feeling excited for Eli. Well shortly after meeting the teacher, the lady in charge took us to the meeting room--me thinking we would be signing the papers--but instead she tells us that Eli would no longer be going to Freedom Elementary & instead Roy Elementary. Which was the first bummer--although I am sure Roy would of been fine. The BIGGEST DECISION CHANGER was that they weren't going to let Eli's ABA therapist go to school with him.
As soon as she said this, my mind was made up. Because I already had the impression to give Eli another year to try and catch up--and Chad & I had a back up plan.
He will be 5, August 23. So I am guessing the deadline for school is Sept 1st (correct me if I'm wrong), so Eli misses the deadline by a week! My first hope was that they would let Eli do another year of preschool--but that wasn't even an option. And in the IEP meeting (a meeting you can have each year if your kid has special needs) when I talked about letting Eli do another year of kindergarten--they first let me know it would be hard to make that happen BUT they think parents should make that decision with an emphasis on it being HARD to do. :)
Oh my goodness--I hope I am not writing too late and this all makes sense when I am through!
So IF Eli would of went to Freedom Elementary this year--he would go to school ALL DAY Monday through Friday in life skills--then have his 15 hours a week of one on one therapy with his ABA instructor. And I just thought of this little boy, barely 5 who still falls asleep in the car when I drive anywhere at 4PM--going to school all day & therapy on top of that each night. His little brain being exhausted, tired, & never having time as a family or to himself. So when the school wouldn't allow the therapist & I knew it'd be hard to hold him back if I ever wanted to--it felt SO RIGHT to take him out of the system this coming year.
We decided on Bravo Arts Academy in Washington Terrace. He will be going to kindergarten there. It's nice because in his preschool he had a lot of peers as examples & at Bravo it will be the same. I like that. It will be a small class & his therapist gets to join him! Which I like cause I can ask the therapist how Eli is doing with the kids! And his therapist will know what the teacher expects & can work on those things with Eli. And I am sure his therapist can help determine how to help Eli with social skills.
Anyhow, I feel at peace with my decision. Eli is coming a far way--he just graduated preschool & is going to summer school. His therapist is working on Eli's alphabet & it's so nice to see him start to recognize letters & learn the alphabet song. Just yesterday his therapist asked him out of ten letters, "what is this letter?" And Eli said, "Y." Then the therapist said, "point to the letter R." And Eli pointed to the right letter. I am THRILLED.
So that's the plan: Bravo Arts Academy--kindergarten. Then I am sure they will test him again next year in the public system & my goal for him is Alternative K. It's a step up from life skills. Then I hope for him to be able to start going to 1st grade 2015. It's nice to have goals. I am going to shoot for the stars & hopefully be emotionally prepared if life deals me differently. No I will be ready.
That was a short post, right? Ha ha. Night. If you have any questions let me know! Also, they are opening the program for 35 more kids with autism. The ABA program that I seriously LOVE!! If you know anyone that has a kid with autism--(I think they have to be 5 & under unfortunately, but I can check)--that would LOVE to have a chance for these services please let me know!
(Also, I am not mad at the school system. I understand that the people really do want what's best for the individual child--but there's rules that need to be followed which is just part of life.)
Night
Katie
Thursday, June 6, 2013
Monday, May 27, 2013
"Love you"
I have wanted to post about this for about a month now--but just haven't. I love documenting Eli's progress & know that looking back on this will be enjoyable in the long run.
I don't remember if I've posted about how BADLY I have wanted Eli to tell me, "I love you." In case I haven't--this is something that I wanted very badly! For my boy to tell me he loves me--with words. Don't worry I already knew he did--with his super big, long, cuddly hugs---thank goodness. But I knew I'd be super excited when he said it with words!!
In the past, right before leaving his bedroom for bedtime I'd say, "Eli say I." Then he'd say, "I." I'd say, "love." And you get the point--I'd force my boy to say, "I love you" one word at a time with me encouraging each word! Ha ha--I am ridiculous. I just hoped one day it'd catch on. And trust me I've been doing this for WELL over a year.
So about a month ago, the first time he said it--I wasn't quite sure I heard him right. It was to his sister as he was leaving her room for her to go to bed. I may have said, "say I love you." And Eli said, "love you!" As he was walking out of her room. Because I wasn't sure I didn't make a big deal about it. Then the next morning as chad was walking out the door to leave to work, Eli says, "love you." I was so excited--crying tears of joy!! Didn't matter that his first two times were directed to everyone else in the family but me--ha ha! But now he says it every night. I no longer have to ask him to say it. As I'm walking out and say, "I love you." He replies, "love you." Sweetest thing ever. And means the world to me. The other night as Chad finished putting him to bed--chad comes over and says, "you know it's not easy for Eli to say that." As in Eli has to put a lot of thought into it & concentrate. And it's so true--with everything he is learning he has to put forward SO much effort & nothing in the learning category comes easy for him.
I love that little boy & am so grateful for him putting those two words together for me. I hope he keeps trying to progress & puts forth the effort to learn new things and grow in ways that are hard for him.
We can all do hard things. I need to try harder to do harder things :) Hope you all enjoyed your Memorial weekend.
With love,
Katie
P.S. I want to be posting soon about what we decided to do for Eli next year--its not Freedom Elementary any more! I will post soon about our decision without putting it on FB.
I don't remember if I've posted about how BADLY I have wanted Eli to tell me, "I love you." In case I haven't--this is something that I wanted very badly! For my boy to tell me he loves me--with words. Don't worry I already knew he did--with his super big, long, cuddly hugs---thank goodness. But I knew I'd be super excited when he said it with words!!
In the past, right before leaving his bedroom for bedtime I'd say, "Eli say I." Then he'd say, "I." I'd say, "love." And you get the point--I'd force my boy to say, "I love you" one word at a time with me encouraging each word! Ha ha--I am ridiculous. I just hoped one day it'd catch on. And trust me I've been doing this for WELL over a year.
So about a month ago, the first time he said it--I wasn't quite sure I heard him right. It was to his sister as he was leaving her room for her to go to bed. I may have said, "say I love you." And Eli said, "love you!" As he was walking out of her room. Because I wasn't sure I didn't make a big deal about it. Then the next morning as chad was walking out the door to leave to work, Eli says, "love you." I was so excited--crying tears of joy!! Didn't matter that his first two times were directed to everyone else in the family but me--ha ha! But now he says it every night. I no longer have to ask him to say it. As I'm walking out and say, "I love you." He replies, "love you." Sweetest thing ever. And means the world to me. The other night as Chad finished putting him to bed--chad comes over and says, "you know it's not easy for Eli to say that." As in Eli has to put a lot of thought into it & concentrate. And it's so true--with everything he is learning he has to put forward SO much effort & nothing in the learning category comes easy for him.
I love that little boy & am so grateful for him putting those two words together for me. I hope he keeps trying to progress & puts forth the effort to learn new things and grow in ways that are hard for him.
| I love you Eli! |
With love,
Katie
P.S. I want to be posting soon about what we decided to do for Eli next year--its not Freedom Elementary any more! I will post soon about our decision without putting it on FB.
Wednesday, May 1, 2013
Eli & his sentences!
Eli is now putting three words together for sentences!! I LOVE it!! I know that it's because of his ABA training, the one on one help he gets for three hours a day. Because they were working on, "I want...", he now says it ALL the time for things he wants. Chad & I couldn't be happier. Plus he started saying other sentences! When he grabs a hold of Chads leg, he says, "I got leg!" And the other day he went to grab himself a fork, & as he was coming back to the table he said, "I got fork!"
Then just yesterday--we have the sweetest neighbors & Dale came over & brought Eli a package of Goldfish. It was so cute, Eli couldn't be happier! After giving Dale a hug & saying thanks he brought the package to me. He first said, "I want fish!" Then he said, "I need help!" To open the package. I was stoked! Usually when he asks for help, he will only say, "help!" But I think he is starting to understand how to use more words for the things he needs. I am in love. Seriously.
He is making a lot of progress. His teacher sent home a note saying that Eli sang the words to the song, "Pete the cod" & "I love my red shoes." She said it was so cute & she wishes she could of recorded it! With his ABA training he is also learning, "If you're happy & you know it" & "Head, Shoulders, Knees & Toes." I don't know how many times I have tried to get him to do "Head, Shoulders, Knees, & Toes" with me but to no avail. And now he sings all the words--he isn't fast yet but he knows what to do!
I am so excited for Eli's future. I feel bad when I share moments of discouragement, I am sorry. Especially to those moms who have special needs kids, who aren't going to get better in different aspects of life such as physical or cognitive. My heart goes out to moms of special needs kids. It's crazy how everyone has a different trial & I hope whichever yours is, it only makes you stronger, resilient, & grateful for the life you have. And if you don't have a trial right now, count your many blessings!
We just went on a trip to St. George & the kids had a blast! It was funny because Chad & I came home exhausted--it made me remember the camping trips my parents took us on & it was really for us kids--not my mom & dad. It's crazy what parents do for their little ones, to help them explore life, give them fond memories & hope with all their heart they grow up well. Any--who-- here are some photos from the trip!
And I wanted to let people know--although Occupational Therapy wasn't for Eli at this time, I still believe it to be great for kids with autism. But with his therapist leaving & them not having one for us until they hired someone else, plus ABA therapy giving him 15 hours a week, I just didn't feel it worth our time right now.
Hope you enjoy your Wednesday!
Love,
Katie
Then just yesterday--we have the sweetest neighbors & Dale came over & brought Eli a package of Goldfish. It was so cute, Eli couldn't be happier! After giving Dale a hug & saying thanks he brought the package to me. He first said, "I want fish!" Then he said, "I need help!" To open the package. I was stoked! Usually when he asks for help, he will only say, "help!" But I think he is starting to understand how to use more words for the things he needs. I am in love. Seriously.
He is making a lot of progress. His teacher sent home a note saying that Eli sang the words to the song, "Pete the cod" & "I love my red shoes." She said it was so cute & she wishes she could of recorded it! With his ABA training he is also learning, "If you're happy & you know it" & "Head, Shoulders, Knees & Toes." I don't know how many times I have tried to get him to do "Head, Shoulders, Knees, & Toes" with me but to no avail. And now he sings all the words--he isn't fast yet but he knows what to do!
I am so excited for Eli's future. I feel bad when I share moments of discouragement, I am sorry. Especially to those moms who have special needs kids, who aren't going to get better in different aspects of life such as physical or cognitive. My heart goes out to moms of special needs kids. It's crazy how everyone has a different trial & I hope whichever yours is, it only makes you stronger, resilient, & grateful for the life you have. And if you don't have a trial right now, count your many blessings!
We just went on a trip to St. George & the kids had a blast! It was funny because Chad & I came home exhausted--it made me remember the camping trips my parents took us on & it was really for us kids--not my mom & dad. It's crazy what parents do for their little ones, to help them explore life, give them fond memories & hope with all their heart they grow up well. Any--who-- here are some photos from the trip!
| Sand Hollow, rode the four wheeler. It was hot, but at least he will wear his helmet! |
| Eli was a determined hiker. So focused. We were proud. I think we need to teach him how to rock climb this summer. |
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| There he was at the top! |
And I wanted to let people know--although Occupational Therapy wasn't for Eli at this time, I still believe it to be great for kids with autism. But with his therapist leaving & them not having one for us until they hired someone else, plus ABA therapy giving him 15 hours a week, I just didn't feel it worth our time right now.
Hope you enjoy your Wednesday!
Love,
Katie
Sunday, April 21, 2013
Freedom Elementary
I woke up 6 AM this morning, unable to go back to sleep with tears in my eyes. Feeling bad for oneself is the worse, it's non productive & gets you nowhere. And even when you try to think about other people who have or had a lot worse trials in their life--it doesn't help. You still feel bad for yourself in that moment. So this morning I am writing, it always helps me feel better, clear my head & look on the bright side of things. Which I have A LOT to be grateful for. Especially when it comes to Eli.
I have good news that I am SO SO happy about & grateful for. They just passed a new amendment for the autism waiver Eli is on & he gets the ABA services until he turns 7!! He is gonna need all the help he can get & I believe this therapy is gonna be life changing for Eli. Eli turns 5 in August--so that's 2 years and a few months of one on one therapy for 15 hours a week. WOW. This gives me the utmost hope for Eli's future & him being able to learn important skills he can use throughout his life.
Friday we met for our transfer meeting for Eli--which was to decide where he will be going next year to school?! There were three options, Eli goes to regular kindergarten & gets pulled out for a little bit of resources, OR Eli goes to this one year kindergarten where the kids are a little bit behind & the teachers work hard to have the kids ready for 1st grade next year, OR he goes to Life Skills which is a class for all kids between kindergarten & 6th grade ranging from all different kinds of physical & mental disabilities/delays. They believe Eli will do best in Life Skills. There is a teacher and a few aids for the kids. He will be going to kindergarten all day. In two weeks I am going to meet the teacher and see the class. They believe this option is best because of his communication delay & I agree.
I can't believe I agree, but I do. I can't see him ready to start writing yet and him understanding everything a typical kindergarten kid can & I think he would just be left behind because it wouldn't be fair for a teacher to focus on just Eli's needs. But it's crazy that I agree--because if I was told this a year ago--I would of gone bizerk. But time has gotten me ready for this, so that I can be somewhat strong. For example, in January Eli brought home in his backpack a paper that I could use for my taxes--like a tax cut for having a kid with delays. I cried when I got that piece of paper. I didn't want it. Or the fact that Eli still is having a hard time recognizing the alphabet, can't sing the alphabet song, and still doesn't count to ten perfectly. These are all things that are a reality.
But I still have hope burning inside. I may get discouraged at times because of news like this & it seems impossible that he will ever catch up--but I believe with the therapy he will be receiving for 2 years & help from school he could be on his way.
I believe it does A LOT of good to write down goals & see them often. So here is my goal for Eli:
For Eli to be able to go to typical 1st grade when he is 7 years old. Year 2014.
"I have come to know that faith is a real power, not just an expression of belief. There are few things more powerful than the faithful prayers of a righteous mother." -President Boyd K. Packer
I read his recent general conference talk this morning & wanted to share this quote--that helps me relax about Eli's future & put my trust in our Heavenly Father.
I will write more about this goal later. I just needed to write until I felt stable and not sad anymore!! But I am always late to church so I need as much time as possible to get ready ;)
Side note Eli's progress with ABA: they are working on him saying, "I want ...." & "I see ...." Because he has a lot of vocabulary but doesn't know how to put two words together they are working on sentences!!! Which is flipping exciting--Eli saying sentences!!! So at home on his own, last Sunday he woke up in the morning & said, "I want bacon!" Instead he would usually just say, "bacon!" Then we were going out to eat & he said, "I want lemonade!" You have no idea how happy we were! He definitely got a lemonade. Then Friday he put two words together saying, "red box!" He of course got a red box. For him to be forming sentences & putting two words together is HUGE progress & headed towards the right direction.
K I really gotta stop writing. Right now. Enjoy your Sunday!!
WAIT-- if anyone at all knows anything or has any thoughts about the Special Ed program at Freedom Elementary, the teacher----PLEASE SHARE!! It's not a for sure thing & I would love your input.
Love,
Katie
I have good news that I am SO SO happy about & grateful for. They just passed a new amendment for the autism waiver Eli is on & he gets the ABA services until he turns 7!! He is gonna need all the help he can get & I believe this therapy is gonna be life changing for Eli. Eli turns 5 in August--so that's 2 years and a few months of one on one therapy for 15 hours a week. WOW. This gives me the utmost hope for Eli's future & him being able to learn important skills he can use throughout his life.
Friday we met for our transfer meeting for Eli--which was to decide where he will be going next year to school?! There were three options, Eli goes to regular kindergarten & gets pulled out for a little bit of resources, OR Eli goes to this one year kindergarten where the kids are a little bit behind & the teachers work hard to have the kids ready for 1st grade next year, OR he goes to Life Skills which is a class for all kids between kindergarten & 6th grade ranging from all different kinds of physical & mental disabilities/delays. They believe Eli will do best in Life Skills. There is a teacher and a few aids for the kids. He will be going to kindergarten all day. In two weeks I am going to meet the teacher and see the class. They believe this option is best because of his communication delay & I agree.
I can't believe I agree, but I do. I can't see him ready to start writing yet and him understanding everything a typical kindergarten kid can & I think he would just be left behind because it wouldn't be fair for a teacher to focus on just Eli's needs. But it's crazy that I agree--because if I was told this a year ago--I would of gone bizerk. But time has gotten me ready for this, so that I can be somewhat strong. For example, in January Eli brought home in his backpack a paper that I could use for my taxes--like a tax cut for having a kid with delays. I cried when I got that piece of paper. I didn't want it. Or the fact that Eli still is having a hard time recognizing the alphabet, can't sing the alphabet song, and still doesn't count to ten perfectly. These are all things that are a reality.
But I still have hope burning inside. I may get discouraged at times because of news like this & it seems impossible that he will ever catch up--but I believe with the therapy he will be receiving for 2 years & help from school he could be on his way.
I believe it does A LOT of good to write down goals & see them often. So here is my goal for Eli:
For Eli to be able to go to typical 1st grade when he is 7 years old. Year 2014.
"I have come to know that faith is a real power, not just an expression of belief. There are few things more powerful than the faithful prayers of a righteous mother." -President Boyd K. Packer
I read his recent general conference talk this morning & wanted to share this quote--that helps me relax about Eli's future & put my trust in our Heavenly Father.
I will write more about this goal later. I just needed to write until I felt stable and not sad anymore!! But I am always late to church so I need as much time as possible to get ready ;)
Side note Eli's progress with ABA: they are working on him saying, "I want ...." & "I see ...." Because he has a lot of vocabulary but doesn't know how to put two words together they are working on sentences!!! Which is flipping exciting--Eli saying sentences!!! So at home on his own, last Sunday he woke up in the morning & said, "I want bacon!" Instead he would usually just say, "bacon!" Then we were going out to eat & he said, "I want lemonade!" You have no idea how happy we were! He definitely got a lemonade. Then Friday he put two words together saying, "red box!" He of course got a red box. For him to be forming sentences & putting two words together is HUGE progress & headed towards the right direction.
| Eli with his Aunt Jodi! |
K I really gotta stop writing. Right now. Enjoy your Sunday!!
WAIT-- if anyone at all knows anything or has any thoughts about the Special Ed program at Freedom Elementary, the teacher----PLEASE SHARE!! It's not a for sure thing & I would love your input.
Love,
Katie
Sunday, March 24, 2013
ABA
It has been a month since I posted--and all my fault. I really don't have any self control when it comes to good food & books. So a long time ago after reading the Twilight Series, I told myself no more fiction books. Well that was kind of dumb, because in reality I just need to learn some self control. But about a month ago I started 2 different series & got lost in my books & did nothing else. It didn't take me a month to read these books thank goodness--ACTUALLY maybe it should of took me a month to finish, so then I would of practiced self control. BUT anyhow, after finishing these series it then took me a week to get my life back in order. And a resolve to still read good books BUT not get totally lost in them that I am staying up way too late & getting behind on every single mundane thing a mother does.
Now that I am done talking about books--since the reason you read this blog is to learn more about Eli, I shall get to the point.
To sum it up real quick, for those who don't want to keep reading--I LOVE ABA & WILL PROBABLY STOP OCCUPATIONAL THERAPY.
I have nothing against my occupational therapist & she is actually leaving at the end of April, so I will finish my last two appointments with her & will have no choice but to be done until they hire someone to replace her. But this ABA program has been going on since last Friday & with what I have seen so far, I don't feel the Occupational Therapy once every 2 weeks will be that effective. Maybe I will change my mind, but so far I am thinking of replacing it with speech therapy instead
This ABA program is a miracle & I wish every kid with autism could have the opportunity to be helped with it. But it is so nice to have them come to my home because it gives Chad & I the opportunity to learn their ways & over time be able to copycat their methods.
Eli has 2 therapists & they come for a total of 15 hours a week. INSANELY LUCKY I KNOW. I actually asked for 10 hours a week, but she gave me 15 knowing how badly Eli needed that extra help. When I found that out, it's one of those moments, (that I have a lot of lately,) where I realize how behind Eli really is. And it can be sad, but I only let it be sad for a moment. :) I am grateful she knew Eli needed 15 hours a week of one on one therapy & got him approved for that.
Eli's first therapist is also over his goals & making the plan that fits Eli best. She is A-MAZING. She knows the ins & outs and doesn't have to think twice about how to help Eli. It just comes second nature to her. She has her masters degree (in what?!, I don't know what the title is)--but it's specifically to help kids like Eli & she ROCKS it. She comes 2 hours a week & at first it will be to show the second therapist how she wants him to train Eli. But eventually it will be to watch & make sure he is doing what he can to help Eli. Eli is in good hands :)
The second therapist is a guy & I actually think he's a real good pick for Eli. Eli gets so excited when we say he is coming over, which is good because that will be every week day. He will come for 13 hours a week, making the total time of both therapists 15 hours. He is a college student getting trained in the ABA methods, but this is something he wants to do career wise & so far we are loving him working with Eli & he does a real good job.
A little bit about ABA is not giving in & getting what you want accomplished by Eli. I don't want to use their names, but since one's a boy & one's a girl you will know the difference. But she said it well & it clicked with Chad & I. She said something along these lines, Eli is comfortable at home, Chad & I understand all his basic needs & wants--but when he is outside the home people don't understand Eli. And this is SO true, I am sure his preschool teacher has learned the basic things Eli needs & wants, because she is with him 4 days a week. But anyone else is clueless to what Eli is saying, if it's a word he can't say clearly. Which there are a LOT of words he can't say clearly. But if we don't start making him use his language more often & teach him to speak understandably then he will stay comfortable & keep to his ways. Therefore, limiting his chances for opportunities outside of our home. The ABA program will test Eli, make him mad at times, & push him to his limits. But isn't this life?! But after all the pushing to the limits each day, Eli is being given the chance to reach his potential & hopefully have a life outside of our home someday.
So this last week was the first 15 hour week for Eli & he has grown to love both his therapists. After they worked their 15 hour week though, the girl therapist after hearing us complain about Eli's eating habits & not trying anything new--willingly volunteered to come Friday night to show us how to get him to try new things. WOW. I invited her husband to come eat as well & the other therapist ended up coming too! But also, WOW on how she works her mad skills. Eli has not tried anything new in the pass year or so & when I make dinner, if it's not spaghetti or pizza he pushes it away & I always end up making him something else. The good news is I will not be making him something else anymore. The bad news is for awhile he might be choosing to go to bed slightly hungry every now and then. But at least I give him an option, right? ;) So after she was at our house for 2 1/2 hours, she got Eli to touch the piece of corn to his tongue in exchange for a Bugle!!! I know this doesn't sound huge to YOU---but trust me it was a MILESTONE!! After he gets use to touching new things with his tongue, it will be on to putting it into his mouth & so forth. So we caught it on video, so I thought I'd share. And I want you to know that this whole time she was sweet to Eli, never rude, & just in control. She said that when Chad & I do it, we need to take turns & switch when one starts to be weak. And to not look him in the eyes, Eli caught me watching him at one point during this whole fiasco & while he was crying alligator tears--my eyes started to tear up & he knew I was weak, so he came over to me hoping I would give in & let him eat something he wanted! He is one smart kid, he may not be able to fully communicate--but he's bright & sly & just the cutest thing ever!
Here's the video:
I love having a blog--maybe someday he will enjoy reading about his childhood from his mom's perspective. The preschool teacher asked for permission for Eli to have another IQ test, when she told me about it--I couldn't help but look sad. It's scary for me & I am nervous for the results. I love Eli so much & I wish he could have the care free childhood I did. And for the most part I believe he feels his childhood is carefree--but there's times when he really wants you to understand what he is saying & Chad & I just have to look at him & say sorry we don't know what you are saying. And he isn't telling us something he can point at, like he used to when he was 3. It's something else, something that an average 4 year old would be able to explain by using words. And I just have to look at him with tears in my eyes, saying sorry buddy I don't know what you are saying. And he has tears in his eyes as well--with frustration that he can't get his words out how he wants them to come out.
When we were making goals with his ABA therapist, she was listing them & said, "for Eli to have a 5 minute conversation with you about something he likes." I had to stop her & say, "do you really think that's possible?" And she said, "yes." This is what I am looking forward to, is my 5 minute conversation with Eli about something he likes. Looking forward to is an understatement. ;)
I can get down sometimes & feel bad for myself or for Eli--as I see other 4 year olds talking away or even 2 & 3 year olds. But Chad during sacrament meeting today wrote something down & shared it with me. "We need to have a perfect brightness of hope that Eli will reach his full potential." So true. Hope is what keeps me going & positive that things will be better for him. I love how faith, hope & charity all intertwine--to make life just that much better. Hope you are enjoying your life. Goodnight.
Love,
Katie
Sunday, February 24, 2013
Potty Trained?
I sure hope so! So I was waiting until February 21st, when I could say it has been 2 months since Eli has had an accident & feel that he was OFFICIALLY potty trained. But of course last saturday the 16th, Eli had an accident. But it was ALL my fault. Chad & I were unloading a swing set we just purchased while the kids were playing inside. And they were both in Eli's room and his door on the inside has a kid proof lock & they had closed the door--so while we were outside for a good amount of time, Eli had an accident because he was locked inside his room & I couldn't hear him!! (I know I am horrible--and this stuff probably never happens to anyone else!!)
I felt so bad getting him from his room, because he knows now that he shouldn't pee his pants-so he was embarrassed. But I told him it was all mom's fault & you did your best trying to yell for me! And no worries, it won't happen again & gave him a HUGE hug.
Just so you know, we started potty training him May of last year. He was 3 1/2 years old & most boys are ready by 3 or earlier AND don't almost take a year once training starts. Personally I felt that he still wasn't ready, but didn't want him to start another year of preschool with other kids potty trained & him wearing a diaper at the age of 4--I was afraid of what other kids would say. And luckily him peeing was pretty simple, he obviously still had accidents as we got started but by the time school started in August--the only accidents he was having was going number 2. Can I call it number 2? I like that better than saying the other word. ;) But after a LONG road of ups and downs & his last number 2 accident at a Christmas party--(which was my fault because I should of took him potty before leaving him at the party)--anyhow, he now tells me when he needs to go potty & it is SO SO SO nice. I remember Chad saying sometime last year, "you know if someone told me, Eli will be potty trained by May--I would be very happy." I thought, you got to be kidding me, a year for him to be potty trained!! Well it's almost May--but even better it's a little earlier than May.
One thing about Eli, with lack of communication it is hard to know what he understands. Which made this process hard--and he had to learn to communicate with me about his need to go potty. But now he says, "potty!" & likes the door closed behind him with no one to bother him. He is getting bigger each day & I would say he is behind about 2 1/2 years in some cognitive development areas--I just hope I can keep him learning & developing so that gap doesn't widen even more.
Well he is potty trained by February!! 3 months earlier than hoped--well that's what I think. What are your thoughts? Can I count him as potty trained?! Because his last accident was my fault?! Be honest.
Enjoy your night! Feel free to share your opinion or any thoughts you may have--all comments have been helpful or a much needed boost.
Love,
Kate
I felt so bad getting him from his room, because he knows now that he shouldn't pee his pants-so he was embarrassed. But I told him it was all mom's fault & you did your best trying to yell for me! And no worries, it won't happen again & gave him a HUGE hug.
Just so you know, we started potty training him May of last year. He was 3 1/2 years old & most boys are ready by 3 or earlier AND don't almost take a year once training starts. Personally I felt that he still wasn't ready, but didn't want him to start another year of preschool with other kids potty trained & him wearing a diaper at the age of 4--I was afraid of what other kids would say. And luckily him peeing was pretty simple, he obviously still had accidents as we got started but by the time school started in August--the only accidents he was having was going number 2. Can I call it number 2? I like that better than saying the other word. ;) But after a LONG road of ups and downs & his last number 2 accident at a Christmas party--(which was my fault because I should of took him potty before leaving him at the party)--anyhow, he now tells me when he needs to go potty & it is SO SO SO nice. I remember Chad saying sometime last year, "you know if someone told me, Eli will be potty trained by May--I would be very happy." I thought, you got to be kidding me, a year for him to be potty trained!! Well it's almost May--but even better it's a little earlier than May.
One thing about Eli, with lack of communication it is hard to know what he understands. Which made this process hard--and he had to learn to communicate with me about his need to go potty. But now he says, "potty!" & likes the door closed behind him with no one to bother him. He is getting bigger each day & I would say he is behind about 2 1/2 years in some cognitive development areas--I just hope I can keep him learning & developing so that gap doesn't widen even more.
Well he is potty trained by February!! 3 months earlier than hoped--well that's what I think. What are your thoughts? Can I count him as potty trained?! Because his last accident was my fault?! Be honest.
| This boy just might cry if you vote NO to him being potty trained! Or I may ;). |
Enjoy your night! Feel free to share your opinion or any thoughts you may have--all comments have been helpful or a much needed boost.
Love,
Kate
Tuesday, February 19, 2013
ABA
No I do not mean-ABC. ;) It stands for Applied Behavioral Analysis. This is our little miracle & one more thing in my life that lets me know God is aware & loves us all as an individual.
So I am going to try and not make this a long story, but we will see what happens... The Sunday before I had Parent Teacher Conference (which I talked about in my first post) in October, Eli had his primary program. (Primary program--where kids get up in front of an audience averaging 300 people & sing & usually have a part to say.) He had a one liner that we worked on at home, not that he had any idea what it was for but he could say every word! Sunday came and I was planning on sitting by him on the bench and helping him with his part. The Sunbeams didn't even sit on the stand, they were just on the front row in the chapel. So I try to take Eli up by carrying him--I do this twice with no luck--he is making a BIG deal of it and I oblige and bring him back to where Chad & Charlotte are sitting. For any first time mother or maybe the excitement doesn't wear off..--it's exciting to see your little one get up there & say his/her part. You wonder if they will have the part memorized, will they be timid or confident, or even better will it be memorable & will they do something funny?! This is what I wanted, I didn't care that Eli could only repeat one word at a time from his part--I just wanted him to go up there & TRY & show off his handsome smile. But he wouldn't have it. Obviously, there are kids who won't say their parts and are shy--but this isn't Eli's case. He has autism & it's much more than being shy. So while kids were getting up saying their lines and singing, I was crying. Then the sunbeams get up to do their part--and that's when I lost it. I got up with Charlotte & took her to the nursing room and cried my eyes out. And it wasn't just the primary program, it was everything that was different about my little boy & I felt bad for myself. I was jealous that my little boy wasn't saying his part. And I was jealous that my boy had something wrong with him & has to struggle SO early on in his childhood. When his life should have no cares or worries right now. --Note: Feeling bad for oneself is the worse thing ever & I don't recommend it.--- ---Also Note: I was fortunate enough to have a girl in the ward that I was still getting to know come in and offer words of comfort and help me get my mind off my own worries, who now I would consider a best friend, she stayed with me through Relief Society class and although my mascara was off for teaching Sunday School, I could at least talk without tearing up.
Then I had Parent Teacher Conference--where I felt a confirmation that my boy is autistic and I need to face the truth. I went home and decided then and there I am going to take action & stop sitting on the sidelines hoping for some miracle that his tongue would be loosed.
My visiting teacher knew someone that her boy was autistic & she did a TON for him when he was little and is now going to school with typical children--she got me her number and I called. This lady then sent me an email of everything she did & it was heaven sent. One thing that her boy was able to do was preschool where they practiced ABA. When I saw this my heart sunk. After Eli's first year of preschool from the age 3 to 4 he was offered the opportunity to go to preschool where they practiced ABA with the children. I went to the school & didn't feel good about it. Although I think it's an AWESOME program and now KNOW it is. At the time I was still thinking--Eli will start talking soon & no he is not autistic. The ABA preschool was like this--about 6 kids. Each kid was sitting down with a tutor, one on one and most were working on flashcards at their own closed off booth. At this school the kids switch tutors so they don't get used to one adult, and as they are working they get rewards when they respond correctly. But they had little play time together as kids. And this scared me, I didn't like the idea of Eli being a "robot" & getting little play time with peers. ABA is GREAT for autistic kids, but at the time I thought he'd do better with a preschool where he could learn from his peers & interact. So I didn't choose ABA.
So I called Eli's preschool teacher crying. Wondering if I did the right thing--and she said at first she wondered herself if I did but she thinks it's good for him to be around his peers and learn from them. Then she told me about this ABA program, didn't explain much but that I should call the number. After getting off the phone with her, I called and left a voicemail. I got a call back that day and how fortunate I was. Because he told me a little bit about the program and said, "the last day to register is today!" So I pulled out my computer and signed Eli up.
This program is called the Autism Waiver. And just because I signed up didn't mean Eli was going to get the services. It was a lottery of 250 people getting chosen for the ABA services & the guy let me know that there were PLENTY of people signed up already. It is ABA services at home. Fortunately, at the end of November I received a call with good news that Eli was one of the 250 kids chosen!!! I was SO SO HAPPY & wanted to start right then and there. But we are about a month out from starting, there's been a lot of paperwork and someone has come to our home twice to ask TONS of questions and make a plan specific for Eli. Someone will be coming to our home & working one on one with Eli for 10 hours a week. So you can't imagine the joy and relief I felt when Eli was chosen. Not only does he get to go to school & interact with peers BUT he now will be receiving ABA services at home until he is 6 years old.
I have a favorite quote: "Your future is as bright as your faith." -President Thomas S. Monson And since faith requires action, I know that because I finally got off the 'sidelines' and called people, signed up, and did those things that felt right--my future just got a little brighter not to mention Eli's future as well.
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| Who Me? Yes you. |
P.S. It ended up being a long story--sorry if you didn't make it through, for those who did--thanks!!
I hope the day is great for you & you find your life blessed.
With love,Kate
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